With so much bad going on in the world, it’s good to write a story about something truly remarkable. And that’s exactly what this story is. While many 7 and 8 year olds are worried about finishing homework so they can play video games, one young hero is trying to make a difference in the world and another is dealing with something that nobody should have to endure, let alone a child.
Dylan Siegel, who’s just 7 years old decided that he was going to help his friend, 8-year-old Jonah Pournazarian, try to find a cure for the disease from which he suffers. It’s called glycogen storage disease (GSD), and there is currently no cure.
What having GSD means for Jonah’s parents is that they must follow a strict, round-the-clock feeding schedule through a stomach tube just to keep his metabolism stable.
So when Dylan was just 6 he decided to write a book to try to help raise money to find a cure for this horrific disease. The book is called Chocolate Bar, and every single penny raised goes to a lab at the University of Florida’s College of Medicine.
To date, Dylan’s book has raised more than $750,000 to find a cure for GSD.
This is truly an amazing and uplifting story about the power of friendship and the urge to help others. The more this story gets out, the more money Dylan can raise for not only his friend, but for everyone who suffers from this terrible disease.
I can’t say enough about the admiration I have for these two young heroes who are trying to make such a massive difference at ages where most children are more worried about getting the coolest new toy or not cleaning their room (“concerns” I’m sure these two still have!).
It never ceases to amaze me when I come across stories such as this where the unselfish acts of children are so incredible. Especially in a society that seems to be getting more and more selfish every day.
Image via Chocolate Bar, The Book Facebook page. Head on over and give them a “like!”